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The Guthy-Jackson Repository for Neuromyelitis Optica
Please help us! We need NMO blood samples
If you or someone you know has been diagnosed with NMO, please help us with a blood sample donation to our Biorepository. Blood samples are vital for NMO research. Many developments in NMO treatment come from doctors and researchers looking at blood samples in the laboratory.
Only a limited amount of NMO samples are available worldwide, making accessibility to NMO biosamples by our research scientists an urgent need. You can help us meet this critical need by donating your samples and raising awareness of our repository program.
»Schedule your donation appointments now.
Already donated? Donate again and often!
Longitudinal draws are also a critical part of creating solutions for NMO. Scientists need to examine multiple samples of your blood over periods of time to study the changes in each sample. Longitudinal draws are just as important as your first sample donation.
How to donate
Donating is easier and faster than you think. Below are the many ways you can donate your samples:
There are 10 collection sites in the contiguous United States where you can go to donate your samples. We will work with you to determine feasibility of travel for you to donate at one of these sites. See contact information below to reach our Repository Nurse.
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Our NMO Repository Study Nurse will go anywhere in the contiguous United States to meet you at your nearest doctor’s office or clinic. Our Repository Nurse will work with you to schedule your appointment. See contact information below to reach our Repository Nurse.
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The 2011 NMO Patient Day Blood Draw has been extended to a three-day period, so attendees won’t have to miss any Patient Day sessions. Click here for details.
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We need your family members’ blood samples
Blood relatives of NMO repository participants may enroll as “control” subjects. Samples from your immediate family could yield important information about genetic and environmental factors related to NMO. Contact us for details about this important aspect of our repository.
Schedule your sample donation now by contacting:
- Martha Mann, RN
- Clinical Research Nurse
- Neuromyelitis Optica Program
- Department of Neurology
- University of Texas Southwestern Medical Center
- 5323 Harry Hines Blvd
- Dallas, TX 75390-8806
- Phone: 858-333-1704
- Email: repository@guthyjacksonfoundation.org
- Web: http:/
/ www.acceleratedcure.org/ repository/ NMOrepository.php
What happens to your sample
Your samples will be stored at the GJCF biorepository. This is like a library where your samples will be kept with some de-identified details of your environment and medical history. A computer stores this information, so that researchers can find the samples they need.
International Repository
Our worldwide repository is in development. Please check back for updates.
Click here to learn more about the GJCF Repository for NMO, its operations and available samples and data.
Last updated 147 days ago by Steve Ornburn
Hi All, if you have not done so it is a easy processes. I was not a able to go to a site but Martha Mann was able to meet me at my Doctor's office and we did the paper work and the blood draw there. It takes less than a hour the larger part of it being the paper work to make sure the t's are crossed and the i's are dotted and far as the confidentiality goes and that you have filled out your history before you go to the appointment. For more information on it you can look at the 2010 Patient Day video on the repository and they will also tell you what you need to know. And if you cannot go to one of the sites or the 2011 Patient Day please talk to Martha Mann at the contact information she is very nice and very helpful. It did not take long at all once everyone was contacted and a date was set. Lets all make it work. It is nice to be able to do something to work towards a cure!! Best wishes to all
davebob 147 days ago
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Steve Ornburn 148 days ago