Neuromyelitis optica (NMO) is an uncommon disease syndrome of the central nervous system (CNS) that affects the optic nerves and spinal cord. This rare neuroimmunologic disease affects approximately one in 100,000 people. Most patients have never met another person who has NMO. They live with their disease isolated from others like them, unable to relate their experience and frustration. In fact, NMO is so rare, many clinicians aren’t aware of it and thus are challenged to provide treatment or even answers for these patients.

The Guthy-Jackson Charitable Foundation’s NMO Patient Days offer patients, caregivers, family and friends a rare opportunity to spend a day with each other and leading NMO scientists and clinicians. Attendees get the latest information about NMO science and clinical treatments, while they share stories, reunite with old friends and make new ones and contribute to enhancing the NMO community.