So happy to hear Kendall!

We were all keeping our hopes up and sent many prayers your way.
Best,
Dan
-----Original Message-----

From: [email address removed] [email address removed] On Behalf Of [email address removed]

Sent: Monday, October 03, 2011 1:57 PM

To: [email address removed]

Subject: Re: [Devics-spectrum] Our Kendall's Latest Update.
Hi all

I am finally off oxygen as of sat.  Yesterday I was moved from the hospital to a transitional care facility.  Hopefully I can regain some strength.  Thanks for all the prayers I went from not being able to breathe to my lungs being clear. Praise God' that was scary.  So, I don't know if I will go back on the cellcept as Dr. Cree   wanted to switch me to Gilenya a secondary progressive MS drug which should help with slowing the nerve degeneration.

Just sharing as we all contine to learn from each other plus there is no other support like what we get from our group.
I love you my NMO family!  
Kendall
_______________________________________________

Spectrum is the new home of Devic's Support
View posts on Spectrum: http://spectrum.guthyjacksonfoundation.org/
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We've translated our NMO/MS web page into Spanish, Japanese and French along with the "NMO/MS What You Need to Know" brochure. Link our page across the world! More translations are on the way. Visit at: http://www.guthyjacksonfoundation.org/nmo-ms-what-you-need-to-know/

NMO Blood Bank Update! Click here to check out our new Blood Bank page and schedule your appointment to donate your NMO sample! http://www.guthyjacksonfoundat​ion.org/repository/

Jenna and I are spreading NMO awareness at the CMSC in Montreal, Canda! We've talked to a lot of great people. One more day here then we go back home. Check out our FB page to see a photo of our booth.

Hello to all,

We are moving along with the GJCF NMO Patient Liaison Network after a brief hiatus due to the November Conference and Summit meetings in January and March. We are drafting up forms, new apparel, ideas for fundraising events and much more for the GJCF NMO Ambassador Packet.

The Foundation’s official color for NMO is Green. It has always symbolized to us a vision of growth which is why it has been included in our logo, website and spectrum. The actual RGB colors are as follows but any shade of green will be just fine as well.

R: 111
G: 180
B: 63

Stay tuned,

Dan

The 2011 NMO Patient Day is only six months away. We are currently in the process of planning the agenda and would love to have your ideas.

If you have seen a presentation at a conference in the past that really inspired you with a wealth of information, I would love to hear about it. All ideas are welcome and greatly appreciated.

Please either respond to this post or e-mail me directly at, dbehne@allggf.org.

All the Best,

Dan

I'll do it Gracie, you're the best!

Thanks,

Dan

-----Original Message-----
From: devics-spectrum-bounces@guthyjacksonfoundation.org [mailto:devics-spectrum-bounces@guthyjacksonfoundation.org] On Behalf Of gracepdm@atlanticbb.net
Sent: Tuesday, April 05, 2011 4:57 PM
To: devics-spectrum@guthyjacksonfoundation.org
Subject: Re: [Devics-spectrum] Support

Dan, you can give her my number.�
Gracie

_______________________________________________
Spectrum is the new home of Devic's Support

View posts on Spectrum: http://spectrum.guthyjacksonfoundation.org/

To change your Spectrum options or unsubscribe to this email list please visit http://spectrum.guthyjacksonfoundation.org/pg/DevicsSupport/settings

Read Frequently Asked Questions: http://spectrum.guthyjacksonfoundation.org/pg/DevicsSupport/FAQ/

Questions about this email list can be sent to spectrum@guthyjacksonfoundation.org

Hello to all,

We received a call from a nice woman today who is experiencing vision problems and cannot join spectrum. She will like to talk with someone within the NMO community and asked about a support group. Her area code is 618 (Illinois I believe). If someone will like to talk with her, I will contact her and ask her if it is ok to share her contact information with you.

This is a great opportunity for me to talk about my plans for the support network. This is not to be confused with the wonderful support network that Tim and Gracie started online with Devic’s Support. I will like to start a map, similar to “Connect the Docs” that will include volunteers throughout the country. Everyone on the map will need to volunteer their time and be willing to list their name, phone # and e-mail on the map. This is similar to what Sandy Siegel is doing at the TMA. These people can work with others in the area (NMO supporters, TMA, MSS) to start fundraisers, run/walk events, etc. The events and time allocation will be solely up to you. Caregiver’s are more than welcome to help as well. The Foundation will send these people a small box of GJCF and NMO items to hand out. We can even create a couple of banners that can be passed around from event to event throughout the country.

Please contact me if you will like to participate. As mentioned in our post yesterday, “Ten people who speak make more noise than ten thousand who are silent.” -Napoleon Bonaparte.

This is a large undertaking, so please bear with us while we get it started and implemented.

All the Best,

Dan