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February 3, 2012 by Sandy
Comments (1)
My Neurologist recently changed my medication from Imuran to CellCept. Can anyone give me some feedback on this? Good move or not?
November 10, 2011 by Sandy
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I am sorry I was unable to attend Patient Day in person. However, I was able to watch the 2011 NMO Patient Day Webcast. It was wonderful!! To those of you in attendance, thank you for your insightful questions. The whole day was extremely informative. Thanks to everyone who made this day possible. I am praying all will have a safe and enjoyable trip home. God bless.
October 18, 2011 by Sandy
Comments (2)
I am a 63 year old female who was diagnosed with NMO in January of 2011. I was completely numb from my waist down. At that time I was given a large dose of steroids. My doctors placed me on Imuron. My condition progressively improved. In July I was walking and most of the numbness was gone from my legs. I plateaued for several weeks and then I slowly started regressing. My legs are getting numb from the inside out . The first of Aug. my GP gave me a round of Prednisone. My symptoms remained stable while taking the steroids but got worse once I stopped. I visited my GP today and explained how I was progressively getting worse (slowly). He asked me if that normal. When I said I had no idea, and he suggested that I put this question on the chat page I had found. Nobody here seems know much about NMO or how to treat it. Any advise or even suggestions anyone could give me would be greatly appreciated. We are floundering here :). Thank you everyone
A Rare Approach to a Rare Disease