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NMO Diaries New Blog
September 7, 2011 by Erin
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New blog post on www.nmodiaries.com on my pregnancy process
NMO Diaries New Footage
August 4, 2011 by Erin
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Hi everyone,
Today I posted the last of my vlog trying to get pregnant. Do I have a cupcake in the oven? Head over to www.nmodiaries.com to find out!
Sincerely,
Erin O'Brien Miller
NMO Diaries New Footage
August 3, 2011 by Erin
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Hi Everyone,
Here is the second part of my journey through this process. Go to
www.nmodiaries.com. To watch the vlogs:)
Sincerely,
Erin O'Brien Miller
NMO Diaries New Footage
August 2, 2011 by Erin
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Hi Everyone,
I have posted a new vlog on www.nmodiaries.com. Please head over there and check it out.
Sincerely,
Erin Miller
http:/
www.nmodiaries.co
Re: [Devics-spectrum] (no subject)
July 7, 2011 by Erin
Comments (0)
Hi Sue,
Hi All (well actually this is for the ladies, sorry guys)
I was just wondering how many of you had children after you were diagnosed
with NMO. If wo were you advised not to have child?
thanks,
Lisa66
_______________________________________________
Spectrum is the new home of Devic's Support
View posts on Spectrum: http:// spectrum.guthyjacksonfoundation.org/
To change your Spectrum options or unsubscribe to this email list please visit http:// spectrum.guthyjacksonfoundation.org/ pg/ DevicsSupport/ settings
Read Frequently Asked Questions: http:// spectrum.guthyjacksonfoundation.org/ pg/ DevicsSupport/ FAQ/
Questions about this email list can be sent to spectrum@guthyjacksonfoundation.org
--
Erin Miller
Re: [Devics-spectrum] (no subject)
July 7, 2011 by Erin
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Sorry Lisa I put Sue on the top:(
Hi Sue,My name is Erin, my husband and I are trying to get pregnant as we speak. I have been diagnosed since 2009 all my doctors said it was fine for me to have children as long as they follow me very closely. I have not had Rituxan for a year now but I am on a low dosage of predisone every day, and any new symptom that pops up I need to notify the doctors right away. I got the clear to get pregnant in September 2010, I slowly tapered off my every day medications and then I had to have my Cd 19 &20 checked every month to see what my levels where at. I am doing fine so far, I only had to do a steroid infusion in March of this year cause my Cd 19&20 levels jumped really high. Knocking on wood my levels have dropped down and I am doing fine:) Let me know if you have any other questions I have researched this topic a lot and have spoken 2 of the top doctors that treat NMO about this topic:)Sincerely,Erin Miller
On Sat, Jul 2, 2011 at 9:21 PM, Lisa66 <lisam-66@sympatico.ca> wrote:
Hi All (well actually this is for the ladies, sorry guys)
I was just wondering how many of you had children after you were diagnosed
with NMO. If wo were you advised not to have child?
thanks,
Lisa66
_______________________________________________
Spectrum is the new home of Devic's Support
View posts on Spectrum: http:// spectrum.guthyjacksonfoundation.org/
To change your Spectrum options or unsubscribe to this email list please visit http:// spectrum.guthyjacksonfoundation.org/ pg/ DevicsSupport/ settings
Read Frequently Asked Questions: http:// spectrum.guthyjacksonfoundation.org/ pg/ DevicsSupport/ FAQ/
Questions about this email list can be sent to spectrum@guthyjacksonfoundation.org
--
Erin Miller
--
Erin Miller
NMO Diaries New Footage
June 1, 2011 by Erin
Comments (0)
Please go checkout www.nmodiaries.com we have posted a new vlog.
Sincerely,
Christine, Erin, and Jenna
NMO patient retreat in Colorado
May 16, 2011 by Erin
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Hi NMO Family,
Late last year, Eric and I had put out a message to the NMO community to gauge the interest of a possible NMO Fun Event that we would host here in Colorado. Thank you to everyone for the positive and tremendous response.
Due to limited timing and additional projects we have unfortunately decided to delay this event for another year. Also, most of the vendors I need to approach are not yet open until the summer season. My NMO Family has given so much to me so it is of the utmost importance that I this event gets the attention it deserves.
You can keep track of our progression (and other inspiring adventures) at www.nmodiaries.com
Erin
New Footage on NMO Diaries
April 25, 2011 by Erin
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New footage on www.nmodiaries.com on how I am doing after the surgery. Please go check it out.
Love,
Erin
NMO Diaries New Footage
April 3, 2011 by Erin
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Hello my NMO Family,
There is some new video footage on the website, Please go check it out. Also make sure you are following us on Facebook and Twitter. Help spread the awareness of NMO.
Sincerely,
Christine, Erin, and Jenna
A Rare Approach to a Rare Disease
