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Re: [Devics-spectrum] How did your year go?
January 1, 2012 by Collinsmommy
Comments (4)
It has been a year of pain & heartache for us. Collin started the year out fighting for his life in the hospital with 6 of his organ systems in failure. He finally became well enough to come home, but he wasn't himself. He never went back to himself & has declined all year. The last few months have been super hard, as he has gone down hill so much. Docs don't know what else to do for him & say he will continue to get worse. Just this past week, they decided it was time to bring Hospice in to care for him. We have watched him suffer all year long & it is only getting worse. So, he began the year fighting for his life & he ended the year fighting for his life. I guess I should be thankful he is still fighting, but the pain of watching him is heartbreaking & too much to bear. I miss his smiling face & his wonderful spirit. We will get through this, somehow, someway. I just want my baby healed & out of pain. My heart wants him here with us, but I realize his healing may not come in the way I want it. 2012 is not looking so good so far.
I love you all. Keep fighting the fight, that is all any of us can do! (((HUGS)))
~Lisa~
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Grace 137 days ago
Dear, dear Lisa,
I, and all of us in the NMO family, want to tell you how much we love and appreciate you. You are not only a fantastic mom and advocate for your son and his disease, but you are a great inspiration and friend to all of us. Thanks for this.
I'm praying hard that 2012 will bring Collin peace and comfort and will bring you understanding and the peace that passes all our human understanding.
Hugs, from Kathi
Kathi 136 days ago
Dear Lisa,
My heart is so heavy for you. Since I joined this website last September, I have been praying for you and Collin and your family everyday. You are an amazing, brave mom, Lisa. I just want you to know that even though I have never met you, your story has touched my heart. Maybe it's because I am a mom too and as moms we have a tender heart towards children. I want you to know that the Lord has truly put Collin on my mind daily, so I pray for your little guy. Here's some verses that I hope will comfort you. God's scriptures are what I turn to as He is my only hope.
Isaiah 40:31 "But they that wait upon the Lord shall renew their strength; they shall mount up with wings as eagles; they shall run, and not be weary; and they shall walk and not faint."
Isaiah 43: 2 "When you pass through the waters, I will be with you; and when you pass through the rivers, they will not sweep over you. when you walk through the fire, you will not be burned; the flames will not set you ablaze."
Psalm 46:1-3 "God is our refuge and strength, an ever-present help in trouble. Therefore we will not fear, though the earth give way and the mountains fall into the heart of the sea, though its waters roar and foam and the mountains quake with their surging. Selah"
Philippians 4:6-7 "Do not be anxious about anything, but in everything by prayer and supplication with thanksgiving let your requests be made known to God. And the peace of God, which surpasses all understanding, will guard your hearts and your minds in Christ Jesus."
If you ever want to talk, I'm here for you. Just let me know and I'll send you my cell number.
Love and hugs,
Michelle
Michelle 136 days ago
A Rare Approach to a Rare Disease
Cherie
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Lisa,
I am so sorry to hear about Collin's condition. I feel so woefully inadequate to offer any consolation as I've never been in your shoes, but you and Collin are incredibly brave and my heart is hurting for you and your family. I'll be praying for Colin's comfort, and for the Lord's strength and peace to help you through. God Bless. Cherie
Cherie 137 days ago