Collin gets Hizentra, it is the subcutaneous version of IVIG.  We infuse him ourselves twice a  week at home.  He likes it better in his thighs, so we rotate legs.  It takes about 1.5 hours to infuse.  There are times we do it several days in a row if he needs it.  It is so much easier on him than going to the hospital to get it done all the time, plus it keeps his levels even & not bouncing up & down.  We are getting ready to start a 10 day course with him to see if it will help his fatigue any.  It is very expensive, but not as much as going into the hospital to have it done all the time.


~Lisa~
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On Thu, Oct 13, 2011 at 3:37 PM, Stan Leake <


Amy, On the advice of the Mayo Clinic, my wife Lydia also takes IVIG along


with Rituxin. She gets them monthly, three days in a row, whereas Rituxin


infusions end up being about twice a year. Like Lonela says, the purpose of


the IVIG is to prevent TM and ON attacks, not help with existing damage.


Best wishes,


Stan





(by Steve on behalf of Stan)