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January 27, 2012 by Collinsmommy
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Dearest Cathy,You have found the right place for support & information. My sweet boy is 9 & was diagnosed at age 5. If there is anything I can help you with, please feel free to ask. I will do whatever I can to help you, support you & help you learn about this disease. Hang in there & trust your instincts! Feel free to email me anytime.
~Lisa~
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On Fri, Jan 27, 2012 at 5:33 PM, Grace <
Hi Cathy,
Welcome to Spectrum. I'm so glad that Suzie connected with you. It's
wonderful to her that Alicia is doing well with Rituxan. I've been using it
for almost five years now and have had really good luck with it.
Grace
January 1, 2012 by Collinsmommy
Comments (4)
It has been a year of pain & heartache for us. Collin started the year out fighting for his life in the hospital with 6 of his organ systems in failure. He finally became well enough to come home, but he wasn't himself. He never went back to himself & has declined all year. The last few months have been super hard, as he has gone down hill so much. Docs don't know what else to do for him & say he will continue to get worse. Just this past week, they decided it was time to bring Hospice in to care for him. We have watched him suffer all year long & it is only getting worse. So, he began the year fighting for his life & he ended the year fighting for his life. I guess I should be thankful he is still fighting, but the pain of watching him is heartbreaking & too much to bear. I miss his smiling face & his wonderful spirit. We will get through this, somehow, someway. I just want my baby healed & out of pain. My heart wants him here with us, but I realize his healing may not come in the way I want it. 2012 is not looking so good so far.
I love you all. Keep fighting the fight, that is all any of us can do! (((HUGS)))
~Lisa~
Your FAVORITE Jewelry Lady!
***FREE*** Jewelry for you!!!
On Sun, Jan 1, 2012 at 8:33 AM, <
hi All! my most excitement this past year of 2011 of that my son, develpemental challenge found a supervised living situation he is happy in. He is 28yrs old. I was only in hospital one time this past year. I am counting my blessings everyday.
A Rare Approach to a Rare Disease