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urinary problems
September 3, 2011 by anita
Comments (4)
does anyone take anything to stop from having to urinate every 2 hours? it is becoming a big problem, would love to not have to go so often. thanks so much for any help
thanks also
July 15, 2011 by anita
Comments (1)
steve, I want to thank all of you also for
all that you are doing with the site. I know it has been a lot of hard work on everybody, and we all apreciate it so very much. have a great weekend. hugs, anita
how to respond to a post
July 15, 2011 by anita
Comments (5)
not sure how to respong to a post without making a new one. like you grace responded to roberts post.
I feel like I am doing ok, just a lot of pain, some days worse than others.
can anyone help with posting, just not sure how to respond. thanks, everyone have a great day!!!!!!! anita
Questions from a newbie
July 13, 2011 by anita
Comments (0)
dora, I was like you when I was first diagnosed, afraid I would not know if I was having an attack or not.
I saw Dr. Greenberg in dallas and he says that if the symtoms last more than 24 hrs then you should check about them. I have some days that I am worse than others, everyday seems different.
hope this helps, take care,
anita
just a test
July 10, 2011 by anita
Comments (0)
I am just seeing if I can post something, have had a lot of trouble, just don't know
what I am doing. hope things are ok with
everyone, have a good week!!
HAPPY EASTER11111
April 23, 2011 by anita
Comments (0)
hope everyone has a blessed and happy easter day!!!!! anita
Re: [Devics-spectrum] just wondering
April 11, 2011 by anita
Comments (0)
all that you are doing. have a great day!!! thanks again, anita
From: "dbehne@allggf.org" <dbehne@allggf.org>
To: devics-spectrum@guthyjacksonfoundation.org
Sent: Mon, April 11, 2011 6:33:54 PM
Subject: Re:
[Devics-spectrum] just wondering
Hi Anita,
Ah yes, the search function. We are currently updating and improving our back-end database with hundreds of key words. It looks like when we merged all the past Devic's Support on Google posts into the Spectrum archive, it might have toggled something loose.
We are working hard at fixing this issue.
All the Best,
Dan
_______________________________________________
Spectrum is the new home of Devic's Support
View posts on Spectrum: http:/
To change your Spectrum options or unsubscribe to this email list please visit http:/
Read Frequently Asked Questions:
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just wondering
April 11, 2011 by anita
Comments (1)
was trying to look up something and the only thing that I could look up was a persons name. is that all we can look up? I am sure I am not doing this right but like a drug say, if I put that in the search place nothing comes up?
hope all is going well with everyone. hugs to all!!!! anita
Re: [Devics-spectrum] Today/Eyes/Spasms
March 22, 2011 by anita
Comments (1)
From: "lealong7@aol.com" <lealong7@aol.com>
To: devics-spectrum@guthyjacksonfoundation.org
Sent: Tue, March 22, 2011 9:55:34 PM
Subject: Re: [Devics-spectrum] Today/Eyes/Spasms
Gracie
I'm praying for you - you've been going through so much lately! Hoping this all passes for you!
I'm with you and Shannon - its my vision that I really freak out about. I can handle the weakness, paralysis, etc far better than the blindness. I'm still haunted with what I "shoulda coulda woulda" done before to regain my sight but now is too late.
I've not been posting because for some reason I've been intimated by the new system - hopefully this gets through! I gotta get back on the horse!
Hugs to
ya'll!!
Lea
Sent on the Sprint® Now Network from my BlackBerry®
-----Original Message-----
From: gracepdm@atlanticbb.net
Sender: devics-spectrum-bounces@guthyjacksonfoundation.org
Date: Tue, 22 Mar 2011 18:17:27
To: <devics-spectrum@guthyjacksonfoundation.org>
Reply-To: devics-spectrum@guthyjacksonfoundation.org
Subject: [Devics-spectrum] Today/Eyes/Spasms
Today whenever I woke up, I already had moon face from yesterday's steroids---it took
me aback whenever I happened to look in the bathroom mirror. Eyes are still the same, maybe a bit worse than yesterday. It feels like my eyes are coated in Vaseline.
Also today, some bilateral spasms of the hands. Very painful. It's surprising that they were bilateral and symmetrical as my tonic spasms present differently on each side. Left leg burns and left hand stays open. Right hip and knee flexion, plantarflexion right foot and toes. Right hand makes a fist. Head and neck pull to right shoulder. They're the same pattern every time. Today though with my hands, it was not only bilateral but symmetrical. I'm not sure if that is cause for concern or not.
The last time that I had an episode was in 2007, seven months after I started Rituxan. It was my eyes, and was resolved quickly with an immediate Rituxan infusion and several days of SoluMedrol. I'm hoping
that this is also resolved quickly and that my vision improves and stabilizes. I fear losing my vision more than any other aspect of this disease.
Also, I'd like to take this opportunity to thank Shannon C. for being such a close and wonderful friend. She understands and feels the same way that I do regarding vision loss, having already lost the sight in one of her eyes. Thank you Shannon for everything that you do for me.
Well, I'm off to bed again. I have a reading assignment that I needed to complete for one of my docs, but obviously I can't complete it. Only one chapter and an epilogue to go---so close yet so far away.
Gracie
_______________________________________________
Spectrum is the new home of Devic's Support
View posts on Spectrum: http:/
To change your Spectrum options or unsubscribe to this email list please visit
http:/
Read Frequently Asked Questions: http:/
Questions about this email list can be sent to spectrum@guthyjacksonfoundation.org
_______________________________________________
Spectrum is the new home of Devic's Support
View posts on Spectrum: http:/
To change your Spectrum options or unsubscribe to this email list please visit http:/
Read Frequently Asked Questions:
Questions about this email list can be sent to spectrum@guthyjacksonfoundation.org
Re: [Devics-spectrum] Rely Issue
March 16, 2011 by anita
Comments (0)
From: Grace <gracepdm@atlanticbb.net>
To: devics-spectrum@guthyjacksonfoundation.org
Sent: Wed, March 16, 2011 9:30:01 PM
Subject: Re: [Devics-spectrum] Rely Issue
----- Original Message -----
From: Gene Dudley
Sent: Wednesday, March 16, 2011 8:30 PM
Subject: Re: [Devics-spectrum] Rely Issue
hey steve, I am not sure why but I am getting emails from various people. I got this and also one from shannon, dan. not sure why I am getting them???
have a good one, thanks, anita
From: "sbo@guthyjacksonfoundation.org" <sbo@guthyjacksonfoundation.org>
To: devics-spectrum@guthyjacksonfoundation.org
Sent: Wed, March 16, 2011 2:42:02 PM
Subject: Re: [Devics-spectrum] Rely Issue
Ionela,
Our intent is to associate replys with the original posts. Spectrum does this by examining some of the "header" information
that is sent along with an email message. As long as an email program sends the right headers, Spectrum can post the message as a reply. Unfortunately, some email programs do not send the right headers. Having said that, I'll review the code for handling replies to see if I can make any improvements.
Thanks.
Steve
_______________________________________________
Spectrum is the new home of Devic's Support
View posts on Spectrum: http:// spectrum.guthyjacksonfoundation.org/
To change your Spectrum options or unsubscribe to this email list please visit http:// spectrum.guthyjacksonfoundation.org/ pg/ DevicsSupport/ settings
Read Frequently Asked Questions: http:// spectrum.guthyjacksonfoundation.org/ pg/ DevicsSupport/ FAQ/
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A Rare Approach to a Rare Disease
