Neuromyelitis Optica: The Learning Center: Ionela's blog

IV SoluMedrol may have worked for me only after my first ON attack, but since I had a second attack one month later I doubt it was very useful. I have never tried PLEX, but the doctor did manage to stop my attacks at that time with IVIG. I started to get better almost instantly.

However, it is uncertain if IVIG works for acute attacks in general. As I said, it worked wonderful for me, but I don`t know if it is as successful with others. Some doctors use it for attacks, others use it as a maintenance treatment.�

Ionela

On Thu, Jul 14, 2011 at 3:35 AM, <gracepdm@atlanticbb.net> wrote:

Geez, why did my reply show up as HTML? �I hate that. �I saw a couple of other ones earlier in the day. �I'm wondering if it's because I gutted and redid my computer? (It was a disaster--don't ask.)

_______________________________________________

Spectrum is the new home of Devic's Support

View posts on Spectrum: http://spectrum.guthyjacksonfoundation.org/

To change your Spectrum options or unsubscribe to this email list please visit http://spectrum.guthyjacksonfoundation.org/pg/DevicsSupport/settings

Read Frequently Asked Questions: http://spectrum.guthyjacksonfoundation.org/pg/DevicsSupport/FAQ/

Questions about this email list can be sent to spectrum@guthyjacksonfoundation.org

Re: [Devics-spectrum] Eyes/Spasticity/Heart.

Ionela

March 31, 2011 by Ionela Comments (0)

Hi Gracie,

I am glad to finally hear good news about you. We don`t know each other, but I am very fond of you since I first joined the group and I found the support I needed and the advice I was looking for (you and the other members of the group were truly truly helpful - you all are dear to me)...�

I do hope you get better and I hope you`ll find the support and the strength to deal with the disease and with all of us ;-)

All my best wishes for you!!!

Have a nice day,

Ionela

Rely Issue

Ionela

March 16, 2011 by Ionela Comments (2)

I receive every new post via e-mail; and I love that! When we reply to the post directly from the e-mail, the answer appears as a new post on Spectrum. So we have a lot of new posts on Spectrum, but many of the new posts are actually replies to other posts. Could it be possible that the replies to be shown as Comments on Spectrum and not as new posts?
I hope my message makes sense. I don`t know if I wrote correctly what I had in mind.

For those who do not receive e-mails with the posts or the daily digest... There is an option in the Notification section of the account. Select: Home/My Profile/Edit Settings/Devics-list Notifications and select the Receive all messages option or Receive Daily Digest option. I hope it works for you! It does for me and it`s great!! ;-)

Thank you for your hard work, the Spectrum is great!!!

Notifications Settings

Ionela

March 5, 2011 by Ionela Comments (4)

Hi everyone!

Does anyone know why I can`t change the Notifications Settings? I want to receive all message on my e-mail or to receive the daily digest, but it seems that the "turn off messages" is on and I can`t change it....

Thank you,
Ionela

Please login to use our advanced features

Ionela

Re: [Devics-spectrum] What has been used to stop attacks?

Ionela

Re: [Devics-spectrum] Eyes/Spasticity/Heart.

Ionela

Rely Issue

Ionela

Notifications Settings

Ionela