The GJCF NMO videos are now on the GJCF YouTube channel! Watch over 50 videos about NMO ranging from science to advocacy. Click the link below to watch NMO videos and don't forget to subscribe to our channel. Also, send this link to your contacts: http://www.youtube.com/gjcf2010

So happy to hear Kendall!

We were all keeping our hopes up and sent many prayers your way.
Best,
Dan
-----Original Message-----

From: [email address removed] [email address removed] On Behalf Of [email address removed]

Sent: Monday, October 03, 2011 1:57 PM

To: [email address removed]

Subject: Re: [Devics-spectrum] Our Kendall's Latest Update.
Hi all

I am finally off oxygen as of sat.  Yesterday I was moved from the hospital to a transitional care facility.  Hopefully I can regain some strength.  Thanks for all the prayers I went from not being able to breathe to my lungs being clear. Praise God' that was scary.  So, I don't know if I will go back on the cellcept as Dr. Cree   wanted to switch me to Gilenya a secondary progressive MS drug which should help with slowing the nerve degeneration.

Just sharing as we all contine to learn from each other plus there is no other support like what we get from our group.
I love you my NMO family!  
Kendall
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Spectrum is the new home of Devic's Support
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We've translated our NMO/MS web page into Spanish, Japanese and French along with the "NMO/MS What You Need to Know" brochure. Link our page across the world! More translations are on the way. Visit at: http://www.guthyjacksonfoundation.org/nmo-ms-what-you-need-to-know/

NMO Blood Bank Update! Click here to check out our new Blood Bank page and schedule your appointment to donate your NMO sample! http://www.guthyjacksonfoundat​ion.org/repository/

Jenna and I are spreading NMO awareness at the CMSC in Montreal, Canda! We've talked to a lot of great people. One more day here then we go back home. Check out our FB page to see a photo of our booth.

Hello to all,

We are moving along with the GJCF NMO Patient Liaison Network after a brief hiatus due to the November Conference and Summit meetings in January and March. We are drafting up forms, new apparel, ideas for fundraising events and much more for the GJCF NMO Ambassador Packet.

The Foundation’s official color for NMO is Green. It has always symbolized to us a vision of growth which is why it has been included in our logo, website and spectrum. The actual RGB colors are as follows but any shade of green will be just fine as well.

R: 111
G: 180
B: 63

Stay tuned,

Dan

The 2011 NMO Patient Day is only six months away. We are currently in the process of planning the agenda and would love to have your ideas.

If you have seen a presentation at a conference in the past that really inspired you with a wealth of information, I would love to hear about it. All ideas are welcome and greatly appreciated.

Please either respond to this post or e-mail me directly at, dbehne@allggf.org.

All the Best,

Dan

I'll do it Gracie, you're the best!

Thanks,

Dan

-----Original Message-----
From: devics-spectrum-bounces@guthyjacksonfoundation.org [mailto:devics-spectrum-bounces@guthyjacksonfoundation.org] On Behalf Of gracepdm@atlanticbb.net
Sent: Tuesday, April 05, 2011 4:57 PM
To: devics-spectrum@guthyjacksonfoundation.org
Subject: Re: [Devics-spectrum] Support

Dan, you can give her my number.�
Gracie

_______________________________________________
Spectrum is the new home of Devic's Support

View posts on Spectrum: http://spectrum.guthyjacksonfoundation.org/

To change your Spectrum options or unsubscribe to this email list please visit http://spectrum.guthyjacksonfoundation.org/pg/DevicsSupport/settings

Read Frequently Asked Questions: http://spectrum.guthyjacksonfoundation.org/pg/DevicsSupport/FAQ/

Questions about this email list can be sent to spectrum@guthyjacksonfoundation.org