http://www.nmodiaries.com)">NMO Diaries http://feeds.feedburner.com/NmoDiaries">

---

Consortium for MS Centers Posted: 15 Jun 2011 08:12 AM PDT I was thrilled to be invited by The Guthy-Jackson Charitable Foundation to help out at the Consortium for MS Centers this year.  The Consortium, which was celebrating their 25th anniversary, was held in Montreal, Canada.  My task: attend the conference, work the trade booth, and create awareness about NMO (NeuroMyelitis Optica).  A quick 40 minute flight from Toronto, this was a rewarding experience. 2 worthwhile things I learned: I met a Physical Therapist who worked with an NMO patient suffering from frequent and crippling spasms (I remember them – they were horrible!).  Their treatment plan consisted of Botox injections into the heels of feet to interrupt the signals triggering the spasms. “Patient Activation” was a term a MS patient used when she described managing her disease.  We aren’t always motivated to do something, like workout, but if we just do it (patient activation) we’ll find that within a few moments of the activity we find the motivation and can accomplish the task. http://feeds.feedburner.com/~r/NmoDiaries/~4/5fSAsPqQS-0?utm_source=feedburner&utm_medium=email">

You are subscribed to email updates from NMO Diaries To stop receiving these emails, you may unsubscribe now.	Email delivery powered by Google
Google Inc., 20 West Kinzie, Chicago IL USA 60610

_______________________________________________
Spectrum is the new home of Devic's Support

View posts on Spectrum: http://spectrum.guthyjacksonfoundation.org/

To change your Spectrum options or unsubscribe to this email list please visit http://spectrum.guthyjacksonfoundation.org/pg/DevicsSupport/settings

Read Frequently Asked Questions: http://spectrum.guthyjacksonfoundation.org/pg/DevicsSupport/FAQ/

Questions about this email list can be sent to spectrum@guthyjacksonfoundation.org

Hi Kendall,

Depression can cause some really weird physical sensations.  I've fought depression for years.  Anyways, whenever I get really bad, my lips and fingertips feel numb and tingly but it's not the same as the numbness and tingling that I have from NMO.  Was just at the pdoc's today for a meds tweak.  I successfully eliminated two of my heavy hitters---YAY!---and they've been replaced with other drugs.  Nothing that has the potential for addiction though---I refuse to go there.

Gracie

_______________________________________________
Spectrum is the new home of Devic's Support

View posts on Spectrum: http://spectrum.guthyjacksonfoundation.org/

To change your Spectrum options or unsubscribe to this email list please visit http://spectrum.guthyjacksonfoundation.org/pg/DevicsSupport/settings

Read Frequently Asked Questions: http://spectrum.guthyjacksonfoundation.org/pg/DevicsSupport/FAQ/

Questions about this email list can be sent to spectrum@guthyjacksonfoundation.org