This is going to sound bad, but I'm so glad that other people know what I'm talking about when it comes to itching.  I thought I was going nuts!  I'll bring it up to my neuro the next time I see him. I itch CONSTANTLY and it doesn't matter where I itch.  It's all over - even my tongue itches.





Take care,
Michelle M.  :)








-----Original Message-----


From: makajohnson [email address removed]

To: devics-spectrum [email address removed]

Sent: Thu, Mar 29, 2012 11:23 pm


Subject: Re: [Devics-spectrum] Itching????





Yes, ITCHING, ITCHING, ITCHING!!!!  I've had this since 2004.  Sometimes it has

just been a mild itch someplace, like on my scalp or eyebrow area.  But I have

itching always, and sometimes it is almost unbearable like right now all over my

back and one side of my hip. 

 You've gotten some good suggestions from people already, but here are some

things that help me somewhat: 1800 mg. of Gabapentin per day, sometimes Xanax at

bedtime when it is really bad, no tight clothing rubbing against me, rubbing the

itching areas with a cold wet washcloth, and using itch controlling lotions such

as Sarna or Eucerin Itch Relief (this lotion thing is actually more a

psychological help since our itches aren't skin related, but are nerve related.)

And remember, our symptoms do change-and sometimes for the better!  Kathi


 

Hello everyone,





I am changing my email address to:   [email address removed]  I'll keep the AOL address for a little while longer, but I'm trying to move all my email communication to my Charter address.




Thanks so much!
Michelle :)

Yes He is!  God is in control indeed!





Take care,
Michelle (M).







-----Original Message-----


From: Michelledean1 [email address removed]

To: devics-spectrum [email address removed]

Sent: Tue, Feb 28, 2012 3:36 pm


Subject: Re: [Devics-spectrum] My Update





Michelle M,

Thank you so much for your prayers!  I need them right now.  It's slow going,

but I get a little more strength each day.  I think my body was completely wiped

out after 20 days in the hospital...however, I'm just taking one day at a time

and I do feel better.  My pain is controlled and I'm really happy I've had some

small improvements in one eye.  I believe that my vision will slowly continue to

improve.  I just keep praying :)  God is in control!

Hugs to you!


 

Oh my gosh Tracy, you had a HORRIBLE year!!  It's got to get better for you this year.





Best wishes to you,



Michelle M.  :D




-----Original Message-----


From: Tracy Owens [email address removed]

To: devics-spectrum [email address removed]

Cc: happyglen1 [email address removed]

Sent: Sat, Dec 31, 2011 3:21 pm


Subject: Re: [Devics-spectrum] How did your year go?





2011 I think has been one of the worst years of my 55 years of life.  I will be

kicking it in the ass as it leaves.  Oh, it could definitely have been worse,

things can ALWAYS be worse.

In January my Mom got sick and she died in Late February.  
On March 10th (my birthday), while I was still in Phoenix going through Mom's

things with my sisters, I relapsed.  My sisters had never actually seen me

relapse before so they kind of freaked out.  My husband came from San Diego and

got me back home.  Got the attack stopped with steroids but ended up back in my

power chair.  Took 5 months but I got out of my chair and I'm walking with my

cane now.
In March my grandson had his tonsils out to help his keep apnea.  Then in May

his dad, my son-in-law, had his tonsils, adenoids, part of his palate, and part

of his tongue removed also due to severe sleep apnea.  2 weeks after the surgery

the beginning scar tissue broke free and he hemorrhaged and almost died before

they got the bleeding stopped.
A few days later we thought Stan (my husband) had the stomach flu as he had

severe vomiting and diarrhea.  After 3 days of keeping absolutely nothing down,

I made him go to the ER thinking they would just give him something to stop the

vomiting and diarrhea and an IV to replace his fluids.  Nope!  Turned out that

his appendix had actually ruptured about 10 days beforehand.  The doctor said if

we had waited even another couple of hours he would have died.  He had to have a

completely open abdominal surgery to find all the pieces of appendix and his

intestines had gotten gangrene so they had to remove his large colon.  He was in

ICU for about a week and off work for 3 months.  
All during this same time frame, my brother-in-law was very sick with his

kidneys, lungs, and heart all shutting down.  He was on life support for a while

until they discovered he had cancer.  He's just finished his chemo treatments

and is doing well.
A month ago Stan started having trouble with his knee.  Finally went to the

doctor and found out that he has osteonecrosis (bone death) of the knee from the

surgery.  So now he is completely non-weight bearing on that leg using forearm

crutches.  He has to be non-weight bearing for 3 to 6 months to see if the bone

regenerates.
In October, my niece and her husband had a man hit them head-on and my niece had

a lot of bumps and bruises and a really severe concussion.  The police officers

said they didn't understand how they survived.
The good news in all this is (1) I'm walking again and doing therapeutic

horseback riding, (2) my son-in-law didn't die and is doing well, (3) Stan

didn't die from his ruptured appendix and accompanying gangrene and his knee

will hopefully improve and not require joint replacement, (4) Larry

(brother-in-law) didn't die and has finished his treatment, (5) niece and her

husband survived and she is doing okay altho still dealing with post concussive

syndrome.
Soooo...  2011 was a horrible year!
---- 
=============

I know my year had its ups and downs. It would be nice to know how others fared

this year. It is nice to know of others. It is inspirational to know how you all

are doing despite the troubles we encounter. Lets hope for a better year. Best

wishes to all davebob



 

I am reading it as well.  It's very interesting.  I'm probably not as far into the book as you are though Grace.  I just hit part 2.





I'd love to discuss it more if anyone is up to it.





Take care,


Michelle M.  :)

 


 


 


-----Original Message-----

From: gracepdm [email address removed]
To: devics-spectrum [email address removed]
Sent: Tue, Nov 22, 2011 2:33 pm

Subject: [Devics-spectrum] The China Study.




Right now, I'm deep into the China Study and I will admit that I am regretting

many of my food choices in the past.  Growing up, I was always a small kid and

my family was forever trying to *put meat on my bones*.  Whenever I think of my

food choices in the past it makes me cringe.  We were a *meat and potatoes*

family.  Bacon and/or sausage in the morning, lots of eggs, tons of farm fresh

unpasteurized milk (my Grandmother used to let me skim the cream from the top),

and ridiculous amounts of meat at lunch and dinner.  Years later as a student,

my diet consisted almost entirely of greasy fast food---food that I could grab

on the run in between classes and work.       

Several years ago I became a vegetarian, for ethical reasons more than anything

else. (I abhor factory farms)  Only very  occasionally do I fall off of the

wagon and eat something that isn't on my list.  Over the years I've discovered

that I can still manage my diet, even when eating out.  At the conference, for

the first time in a very long time I did eat some chicken and although it was

delicious, I immediately felt guilty for daring to eat one of my feathered

friends.
Anyways, The China Study is riveting and once again I am rethinking and planning

to revise my diet.  We really *are* what we eat.
Grace


 

That would be wonderful!

Michelle

Michelle,

I live in Michigan too.  Maybe she can combine visits and get a hospital in our

state to participate?

Steph

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Cool! Thanks Tracy.



I'm not getting the emails.  I am getting ones from other people, but not the ones I'm sending so I wasn't sure if they were going through.



Take care,

Michelle :)

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Spectrum is the new home of Devic's Support

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