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May 2011
Re: [Devics-spectrum] NMO Patient Liaison Network
May 11, 2011 by JennyG
Comments (0)
hi Dan,
I am interested in trying to help as much as I can.
Thank you,
Jenny
From: dbehne@allggf.org
To: devics-spectrum@guthyjacksonfoundation.org
Date: Tue, 10 May 2011 18:37:15 -0500
Subject: Re: [Devics-spectrum] NMO Patient Liaison Network
Thanks Shannon,
I will be in touch soon. I hope that all is well with you.
All the Best,
Dan
From: devics-spectrum-bounces@guthyjacksonfoundation.org [mailto:devics-spectrum-bounces@guthyjacksonfoundation.org] On Behalf Of Shannon Chrapko
Sent: Saturday, May 07, 2011 8:35 AM
To: devics-spectrum@guthyjacksonfoundation.org
Subject: Re: [Devics-spectrum] NMO Patient Liaison Network
Hi Dan, I too am willing and interested in helping you.
I too want to say thank you
Shannon
On 2011-05-06, at 5:36 PM, Rachel Tracy wrote:
I am excited and willing to help Dan!!! :) :) Things are good! I am off to a cabin retreat for the next week then a trip to kansas to see my cousin graduate from Kansas State. :) I will catch up when I get back from my trips! :) :)
With many thank yous!!
Rachel
From: Dan Behne <dbehne@allggf.org>
To: "devics-spectrum@guthyjacksonfoundation.org" <devics-spectrum@guthyjacksonfoundation.org>
Sent: Fri, May 6, 2011 10:30:25 AM
Subject: Re: [Devics-spectrum] NMO Patient Liaison Network
Thanks Lisa,
I have added you to my list.
I hope that all is well with you, your family and Collin. I keep him in my prayers at church.
I wish you all the best,
Dan
From: devics-spectrum-bounces@guthyjacksonfoundation.org [mailto:devics-spectrum-bounces@guthyjacksonfoundation.org] On Behalf Of Lisa McDaniel
Sent: Friday, May 06, 2011 9:08 AM
To: devics-spectrum@guthyjacksonfoundation.org
Subject: Re: [Devics-spectrum] NMO Patient Liaison Network
Dan,
I am certainly willing to help in any way I can! Thank you all so very much for all the hard work you do!!
Lisa McDaniel
~Lisa~
Your FAVORITE Jewelry Lady!
***FREE*** Jewelry for you!!!
On Fri, May 6, 2011 at 10:59 AM, <dbehne@allggf.org> wrote:
Hello to all,
We are moving along with the GJCF NMO Patient Liaison Network after a brief hiatus due to the November Conference and Summit meetings in January and March. We are drafting up forms, new apparel, ideas for fundraising events and much more for the GJCF NMO Ambassador Packet.
The Foundation’s official color for NMO is Green. It has always symbolized to us a vision of growth which is why it has been included in our logo, website and spectrum. The actual RGB colors are as follows but any shade of green will be just fine as well.
R: 111
G: 180
B: 63
Stay tuned,
Dan
_______________________________________________
Spectrum is the new home of Devic's Support
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_______________________________________________
Spectrum is the new home of Devic's Support
View posts on Spectrum: http:/
To change your Spectrum options or unsubscribe to this email list please visit http:/
Read Frequently Asked Questions: http:/
Questions about this email list can be sent to spectrum@guthyjacksonfoundation.org
_______________________________________________ Spectrum is the new home of Devic's Support View posts on Spectrum: http:/
Re: [Devics-spectrum] Fractured my Ankle :/
May 8, 2011 by JennyG
Comments (1)
sorry to hear about the fx ankle! what happened to the Rooster?
In January I fx my foot, I will be thinking of you. Be Careful on the crutches, or however you get around!
Jenny
From: carahill@insightbb.com
To: devics-spectrum@guthyjacksonfoundation.org
Date: Thu, 5 May 2011 19:51:33 -0400
Subject: Re: [Devics-spectrum] Fractured my Ankle :/
Love,
Cara
Sent via MOTOBLUR™ on Verizon Wireless
-----Original message-----
From: h.sowalla@gmail.comSo, yesterday I fell outside while walking my dog. Actually to shorten the story Cali (my dog) and I were attacked by a rooster, which caused me to trip and fall down a set of steps and twist my ankle. I ran to the ER last night to get Xrays and had an appt. with what I call my "foot specialist" today. As it turns out I fractured my ankle :( I have to go for a tri-phase bone scan to see how extensive the damage is, but for now I am stuck in an aircast and have to use my wheelchair or crutches (whichever I can manage, although my balance on crutches is really sucky). I swear if its not one thing going wrong its another! :( But, at least my doc gave me some nice strong pain meds to help with the pain, which is horrible! *sigh*
To: devics-spectrum@guthyjacksonfoundation.org
Sent: Thu, May 5, 2011 23:38:28 GMT+00:00
Subject: [Devics-spectrum] Fractured my Ankle :/
sometimes I feel like I should live in a bubble, lol.
Hope everyone else is doing well!
Heather
_______________________________________________
Spectrum is the new home of Devic's Support
View posts on Spectrum: http:// spectrum.guthyjacksonfoundation.org/
To change your Spectrum options or unsubscribe to this email list please visit http:// spectrum.guthyjacksonfoundation.org/ pg/ DevicsSupport/ settings
Read Frequently Asked Questions: http:// spectrum.guthyjacksonfoundation.org/ pg/ DevicsSupport/ FAQ/
Questions about this email list can be sent to spectrum@guthyjacksonfoundation.org
_______________________________________________ Spectrum is the new home of Devic's Support View posts on Spectrum: http:/
A Rare Approach to a Rare Disease
