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February 2012

Michelle's 2-17-2012 Update.

February 17, 2012 by Grace   Comments (2)

Have just spoken with Michelle. Things are slowly improving and there is a possibility that she will be released from the hospital this afternoon. Please keep her in your thoughts and prayers.

Grace

Our Erin Is Having Her Baby! :-)

February 12, 2012 by Grace   Comments (0)

Our own Erin O'Brien Miller just phoned to let me know that her water just broke and she is on her way to the hospital. This is so exciting! I can't wait to see photos of Baby Boy Miller. She'll be phoning me later this evening to give me an update.

Grace

Michelle's Latest Update.

February 11, 2012 by Grace   Comments (0)

Michelle is back in the hospital as she has continued to have difficulty with her eyes. She is doing more IV SoluMedrol and is hoping that this will take care of it. If not, they will once more consider Plasmapheresis. Please keep her in your thoughts and prayers.

Grace

Michelle's 2-4-2012 Update.

February 4, 2012 by Grace   Comments (2)

Just wanted to let you all know that Michelle has been released from the hospital after completing her course of Plasmapheresis. During her hospitalisation, she required multiple blood transfusions due to her fibrinogen running low. She's now resting quietly at home. We're all hoping that her vision will improve over the coming weeks. Please keep her in your thoughts and prayers.

Gracie

[Devics-spectrum] Rituxan and Psoriasis.

February 3, 2012 by Grace   Comments (0)

Every time that I have my Rituxan infusion, within a short time I have a bad
Psoriasis flare. This makes perfect sense to me as NMO is B Cell mediated
and Rituxan depletes B Cells, while Psoriasis is T Cell mediated.

Right now, my scalp is really bad and the topical treatments aren't working.
Over the last year, I've lost over half of the thickness of my hair, and my
scalp is extremely itchy (I even scratch it in my sleep). The injectable
medications are out of the question since I'm already on Rituxan.

Is anyone else dealing with Psoriasis and if so, what medications are you
using?

Grace

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Little Collin's 2-1-2012 Update.

February 1, 2012 by Grace   Comments (1)

From Caring Bridge.

Written by Lisa McDaniel

The last 3 weeks have been a tremendous battle for Collin. There have been several times when we thought it was the end of the battle for him, but he is still here with us. It has been heartbreaking to watch him struggle for breath at times. He has times where he has very long pauses between breaths, times where his heart rate has been in the 30s or up over 100, times where his blood pressure has been extremely high. Through it all, Collin is still fighting to be with us. His body is very tired & worn. His body is slowly shutting down. He mostly sleeps now & we just try to keep him comfortable with meds. He is our Super Hero. The hospice nurses are here everyday. We have wonderful nurses & they already feel like part of our family. The whole staff at New Beacon has been very kind & caring. We appreciate them all so much and for their care of Collin & our family.

We will be getting more bracelets soon with a new Super Hero logo on them, so look for those very soon!

Our friends have graciously put together a Fundraiser/Sing/Supper for our family. It will be Saturday, Feb. 25 at Choccolocco Community Church. Spaghetti Supper will start at 5, singing at 6. Groups singing are: Clearvision, Crystal River & Hope's Journey. For more information, call Metha Dover 256-605-1033 or for information including donation information:

https://www.facebook.com/events/342490542440904/

Thank you so much for checking in on us. Please continue to keep us in your prayers as we continue to walk this path. Pray for peace for Collin and for his pain & suffering to end.