We've updated the "Connect the Docs" section on our website! Known as "Mapping NMO" you can find NMO doctors, NMO Advocates and NMO Blood Draw sites in one easy location on our site. With your help we are spreading NMO awareness around the world! Suggest an NMO doctor, become and NMO Advocate or schedule your NMO Sample Blood Draw by visiting: http://www.guthyjacksonfoundation.org/mapping-nmo/

We at The Guthy-Jackson Charitable Foundation wish our entire NMO family a very Merry Christmas, Happy Hanukkah, and festive holiday season! May you all have a blessed and joyful holiday and a wonderful New Year!

http://www.guthyjacksonfoundation.org/happy-holidays-from-the-guthy-jackson-charitable-foundation/

The 2011 NMO Patient Day photos are now available to view and download online! Visit http://www.guthyjacksonfoundation.org/events/2011-patient-day/ to view the photos.

Save the Date! The Guthy-Jackson Charitable Foundation's 2011 NMO Patient Day will be held on November 9, in Los Angeles, CA. Details Forthcoming.

The Repository Blood Draw will be on November 8, 9 and 10. Times to be determined.

Wishing you all the best from the Foundation.

Hello to all Devic’s Support on Spectrum fans,

Thank you for your understanding in regards to the minimal amount of issues with Devic’s Support on Spectrum. Please continue to contact us if you are experiencing a login or technical issue. We strive to get it resolved as soon as possible.

We are in the process of updating the Connect the Docs page. Thanks Burton for the recent doc to add to the map and thank everyone for your participation in the, “Connect the Doc’s” page. We will continue to grow the map to include NMO clinicians throughout the world.

Congratulations to Dr. Brian Weinshenker of the Mayo clinic for being awarded AAN’s Dystel Prize. Please follow this link to view the article in its entirety, http://www.aan.com/press/index.cfm?fuseaction=release.view&release=939

Thank you,

The Devic’s Support on Spectrum Team

Quote of the week:
“Ten people who speak make more noise than ten thousand who are silent.”
-Napoleon Bonaparte

As Gracie mentioned in previous posts, please take some time to familiarize yourself with all the new features on Spectrum. Some items to look at in particular include:

1. FAQ section – We will be posting this on the home page of Spectrum for your reference. It can be currently found at, http://spectrum.guthyjacksonfoundation.org/pg/DevicsSupport/archive#

2. Logged In vs. Not Logged In:
    • When you are logged in you can:
       - Post a new discussion in the best and fastest way
       - Edit profile settings
       - Upload photos
    • When you are not logged in you can:
       - Search articles
       - Find NMO clinicians
       - View (not upload) photos/videos
       - Read posts
       - Download the newsletter

3. Technical issues currently being addressed:
    • Search function throughout the entire site
    • Multiple Posts
    • Deleted Posts

4. Other than spammers, a spectrum user will never be censored – this holds the same for all past, present and future users. Please keep in mind that there is a place and time to consider the audience.

Thank you,

The Devic’s Support on Spectrum Team

Let's work together to help spread awareness about NMO!

Our new brochure, "NMO/MS What You Need to Know" is now available on our website. Visit http://www.guthyjacksonfoundation.org/nmo-ms-what-you-need-to-know/ to view the brochure.

Reny Tan Featured on "The Journey - Big Ten Basketball" This view this feature visit: http://www.bigtennetwork.com/generic/programming/the-journey (CORRECTED LINK). The story will begin 1 minute and 30 seconds into the video.

In recognition of the millions of children and their families affected by rare disease, today we celebrate. Today we take a few minutes to reflect on the efforts that are taking place daily and globally in the fight against disease.

Please join us in supporting these families and this community. Today, wear jeans! And when asked why you are wearing jeans, tell them that "today is World Rare Disease Day, and I am showing my support for the 250 million children and their families worldwide that are affected"

World Rare Disease Day is a time when the community of affected children and families come together to garner support for their efforts.

Please join the Global Genes Project in its support for World Rare Disease Day by wearing jeans. It's that easy!

Imagine lawyers in courtrooms, business executives in boardrooms, state legislators and others from all walks of life wearing jeans the week before or Friday before World Rare Disease Day – all to show their support for those affected by rare disease worldwide. www.rarediseaseday.us.

It can happen. And this simple act could help change the lives of children affected by rare diseases.

So help today! Wear your jeans!

For more information visit: www.globalgenesproject.org