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Posted On: 07/29/2010
Recent Article in the Wall Street Journal: NIH Takes On New Role in Fight Against Rare Diseases

Posted On: 07/28/2010
New NMO Research Publication: Familial neuromyelitis optica

Posted On: 07/27/2010
The Campaign for Better Care will be holding a special public event in Washington, DC — the "Building Better Care" forum. See the link below to view the live webcast tomorrow, July 28th starting at 8:30 a.m. EST.

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Devic’s Support

Posted On: Thu, 29 Jul 2010 22:18:13 UT
Still sleeping too much.
Had my blood work done last week. Cd19s are at zero and Rituxan is
scheduled for the end of next month. Not sure about the rest of the
blood work, though the nurse thought that all results were within
normal range. Neuro called and left a message that he would be
speaking with the nurses regarding what he'd like to do next.

Posted On: Thu, 29 Jul 2010 02:03:41 UT
finally home
I got bit by an unknown bug last night. When I went to sleep last
night, I took Benadryl because the area was the size of a golf ball
(that is my normal reaction). Well, when I got up this morning, it
was the size of a baseball. I took a shower and then all heck broke
loose. My right arm up to my shoulder is double in size, red, hot,

Posted On: Mon, 26 Jul 2010 13:00:08 UT
Collin is hospitalised.
Little Collin is having a bad flare and is currently hospitalised.
See his CaringBridge site for Lisa's updates.

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 Join Us for our live webcast or attend in person!  Event: NMO Patient DayDate: Nov. 10, 2010Participate in our live webcast ofthe 2010 NMO Patient Day or attend in person!To atten....
Eric: We are new to the Spectrum Community.  Our daughter, Ireland, was just diagnosed with NMO three weeks ago.  She is 8 years old and has had this disease since she was 6.  We are absolute....
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Neuromyelitis optica (NMO) doesn’t look at age, race or gender. Collin’s story is about a courageous young boy and his family who have stopped at nothing to put his needs above their own a....
Grace: Little Collin and his entire family are an inspiration. We love you Collin McD!    Grace....
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Q & A about Neuromyelitis Optica Spectrum Disease with Ben Greenberg, M.D, M.H.S.    A top clinician in NMO, Dr. Benjamin Greenberg talks with Spectrum about NMO treatment, diet a....
Grace: Hello Dr. Greenberg,  Another question if I may.  What of the patient who experiences a clinically defined relapse (Not a pseudo exacerbation.) at the desired 0% and 0 absolute CD19 count?&....
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In 2009, Grace Jeffers of Chicago was wheelchair-bound, having severe back pain and losing control of the left side of her body. She had been diagnosed with multiple sclerosis, but when a blood test s....
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Click on the map to enlarge. ASIA     EUROPE     SOUTH AMERICA     UNITED STATES   Alabama 1. Clinician: Jayne Ness, M.D., Ph.D.C....
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Description: What book(s) do  you recommend?  The Guthy-Jackson Charitable Foundation recommends these uplifting and healthy living books to help those living with NMO.  Visit these....
Megan Kenneally: Thank you so much for your recommendation. We will have to check it out!....
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Click on the map to enlarge.     ASIA     EUROPE     SOUTH AMERICA     UNITED STATES Argentina   1. Clinician: Silv....
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The Guthy-Jackson Charitable Foundation works to create a scientific research model that will ultimately cure patients with neuromyelitis optica (NMO) spectrum disease. GJCF Founder Victoria Jackson a....
StevenB: My dad suffers from Idiopathic Pulmonary Fibrosis, a very serious, orphan lung disease. He and Mom viewed a number of the videos over the weekend.  They were very impressed with the new rese....
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Click on the map to enlarge. ASIA     EUROPE     SOUTH AMERICA     UNITED STATESUnited Kingdom1. Clinician: Anu Jacob, M.D., M.R.C.P.....
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Click on the map to enlarge. ASIA     EUROPE     SOUTH AMERICA     UNITED STATES   Japan   1. Clinician: Ichiro Nakashima, M.....
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2009 NMO Roundtable Conference

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2009 NMO Patient Session

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