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Posted On: 09/02/2010

From Mascara to Medicine: A Mom on a Mission

Posted On: 08/27/2010

Is your NMO doctor on our map? We have recently added new NMO doctors to our map and we need your help to keep it going. Find out if your NMO doctor is on our map or email us if you want to add your NMO doctor.

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Posted On: 07/29/2010

Recent Article in the Wall Street Journal: NIH Takes On New Role in Fight Against Rare Diseases

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Devic’s Support

Posted On: Tue, 07 Sep 2010 11:07:18 UT

get better

jo ,thinking of you donna

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Posted On: Mon, 06 Sep 2010 23:59:46 UT

hand swelling

I am seeing if anyone else has this issue.

Last month I woke up with my hands double in size. The immunologist
that I saw said it was from a bug bite from something unknown.

Well, I woke up this morning with both hands double in size. They are
numb, hot, and then there is times where it feels like fire ants are

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Posted On: Sat, 04 Sep 2010 19:57:19 UT

Update 09-04-2010

Hi everybody I know some of you know I'm in the hospital with a flare.
I have a new spot in my cord (from T5 to T7).

So on sunday I woke up and couldn't feel the cold floor in my left
foot, the right was ok though, I thought that the numbness was gonna
go away so on monday I couldn't talk to the neuro I called tuesday and

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NMO Discussions

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Derek Blackway

NMO Patient Session 2010

Comments: 6

Join Us for our live webcast or attend in person! Event: NMO Patient DayDate: Nov. 10, 2010Participate in our live webcast ofthe 2010 NMO Patient Day or attend in person!To attend or....

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Derek Blackway

Mayo Clinic Blog Site: From Mascara to Medicine: A Mom on a Mission

Comments: 0

Mayo Clinic Posts: "From Mascara to Medicine: A Mom on a Mission"By Elizabeth Rice When their daughter was diagnosed with neuromyelitis optica (NMO) in June 2008, the world turned upside down for cosm....

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Derek Blackway

Comments: 0

Click on the map to enlarge. Don't see your NMO doctor listed? Email us. ASIA EUROPE SOUTH AMERICA NOR....

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Derek Blackway

Comments: 0

Click on the map to enlarge. ASIA EUROPE SOUTH AMERICA NORTH AMERICA Japan 1. Clinician: Ichiro Nakashima, M.....

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Derek Blackway

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Click on the map to enlarge. ASIA EUROPE SOUTH AMERICA NORTH AMERICAUnited Kingdom1. Clinician: Anu Jacob, M.D., M.R.C.P.....

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Derek Blackway

Comments: 1

Click on the map to enlarge. ASIA EUROPE SOUTH AMERICA NORTH AMERICA Argentina 1. Clinician: Silvia Tenembaum, M.....

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Steve Ornburn

Living with NMO: Collin’s Story

Comments: 1

Neuromyelitis optica (NMO) doesn’t look at age, race or gender. Collin’s story is about a courageous young boy and his family who have stopped at nothing to put his needs above their own a....

Grace: Little Collin and his entire family are an inspiration. We love you Collin McD! Grace....

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Chief Moderator

Q & A about NMO with Ben Greenberg, M.D, M.H.S.

Comments: 5

Q & A about Neuromyelitis Optica Spectrum Disease with Ben Greenberg, M.D, M.H.S. A top clinician in NMO, Dr. Benjamin Greenberg talks with Spectrum about NMO treatment, diet a....

Grace: Hello Dr. Greenberg, Another question if I may. What of the patient who experiences a clinically defined relapse (Not a pseudo exacerbation.) at the desired 0% and 0 absolute CD19 count?&....

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Derek Blackway

Neuromyelitis Optica Treatment at Mayo Clinic Restores Grace Jeffers’ Sight

Comments: 0

In 2009, Grace Jeffers of Chicago was wheelchair-bound, having severe back pain and losing control of the left side of her body. She had been diagnosed with multiple sclerosis, but when a blood test s....

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